Saturday, June 2, 2007

The incurable dementia that strikes younger people




Posted Thursday, May 24, 2007


Tragedy may be looming, but love set up camp long ago in this Schaumburg home.

The simple pleasure of letting Mary Beth, his wife of 34 years, know how he feels about her is something Steve Riedner cherishes.

“How many more opportunities am I going to have to tell her, ‘I love you’?” Riedner says, hinting at the sad silence in their forecast.

“I’m going to know anyway,” his wife says.

A critical thinker with strong opinions, Riedner has contributed to several of my columns over the years. When moments of confusion and being tongue-tied became more frequent in his mid-50s, Riedner chalked it up as “a sign of getting old.”

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Make Like a Tree!

There’s a Monty Python sketch where John Cleese plays a detective with some kind of aphasia. He enters a room and tells the occupants:

I’m afraid I must not ask anyone to leave the room. No, I must ask nobody … no, I must ask everybody to… I must not ask anyone to leave the room. No one must be asked by me to leave the room.

After a few more sentences that get less and less coherent, he finally manages to produce a string that conveys the desired meaning, or at least something sufficiently close:

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NCCU, Chinese in joint venture

DURHAM - Communication therapists at N.C. Central University are forging relationships with Chinese universities to provide formal speech training to college students half a world away.

Faculty in NCCU's communication disorders department, in the School of Education, plan to use distance education to offer formal speech therapy to English-speaking Chinese students.

This training would fill a huge void, said Thomas Layton, one of the NCCU speech pathologists involved in the program. China has far too few speech therapists; there are only about 50 in Beijing, a city of 20 million, Layton said. By comparison, there are more than 1,500 in North Carolina, which has about 9 million people. All of China has about 500 speech therapists, he said.

"Our little state has more than in their whole country," Layton said. "There is an unbelievable number of children and adults who need speech therapy."

Layton is working with NCCU professor Jianping Hao, who received two medical degrees in China before coming to the United States and obtaining a Ph.D. in speech science from Kent State University.

Now, just one Chinese University offers an undergraduate speech and language pathology program, and it is not as formal as it needs to be, Layton said, likening much of China's speech education to "on-the-job training." NCCU's program, strictly a graduate venture on campus, will offer a more structured set of courses. Officials hope to offer four or five courses beginning in the spring.

Courses will tackle various speech-related sub-disciplines associated with children and adults. Treatment for autism will be one focus, as will aphasia, a speech condition afflicting stroke sufferers.

This fall, NCCU expects to get its first Chinese faculty member as an exchange scholar as well as Chinese professionals who will train NCCU students to use Dr. Speech, a software package developed by them that has universal application. Eventually, Hao and Layton expect to send NCCU students to China to work with scholars, professionals and patients.

Mastering the mounds


By Donna O'Neil/doneil@cnc.com
GateHouse News Service

Baseball is not just a sport to Matt Cook. It’s a passion, a passion that was almost taken away from him less than two months ago.

Yet there he was last Thursday, the Hamilton resident and baseball pitcher, passionate as ever about the game he loves and ready to shine. After a trying month and a half, Matt made it to the show. At age 15, the freshman Hamilton-Wenham Regional High School varsity pitcher, took the mound at the mecca of all baseball parks, Fenway, like a seasoned professional.

ss_icon Mastering the mound

“He threw a strike. He threw a strike,” proclaimed his proud nana, Emily Cook, of Hamilton, as she watched from the warning track as her grandson throw out the ceremonial first pitch at the Red Sox versus Detriot Tigers game last Thursday. Nana’s observations were further confirmed when Red Sox shortstop Julio Lugo said, “Nice throw,” as Matt walked off the field.

Adorned with a Fenway logo and the words, “Matt Cook, Ceremonial First Pitch, May 17, 2007,” he got to keep the official Major League baseball he threw out.

His adventure to the Fenway mound was a nice reward for a very complex journey.

Throwing out the first pitch was an item at a recent charity auction and the anonymous winning bidder donated it to Children’s Hospital, instructing them to donate it to somebody worthy of the honor. A representative from public affairs at Children’s Hospital called Ann Connors-Cook, Matt’s mother, and said, “There’s no one more worthy of this honor than your son.”

See, since late March, Matt has been an unwitting participant in a life altering experience.

“Matt suffered a blow to the left side of his head from a line drive hit back at him while he was pitching batting practice (for the high school team) on March 30,” said Ann. “Matt suffered expressive aphasia, which is the loss of a previously held ability to speak spoken or written language, due to disease or injury of the brain. He also lost sensation on his entire right side. In the ER that evening at Children’s Hospital, we were told that it would only get worse before it got better because the brain continues to swell for the first 72 hours, causing a great deal of pain. He was sensitive to light and noise so he spent the first several days in a dimly lit, quiet room. He was on strong pain medicines, but as they were wearing off, it was so heartbreaking to see him in excruciating pain. It’s a parent’s nightmare. Day by day, this all got a little better.”

Matt spent a week at Children’s Hospital in Boston following the injury and then was sent to Spaulding Rehab for three and a half weeks where he had physical, occupational and speech therapy.

His neurosurgeon said that he has “made a remarkable recovery” and his mom says that he is speaking now with very little hesitation. He returned to school, Friday, May 11, and is continuing his therapies on an outpatient basis at Shaughnessy-Kaplan Rehab Hospital in Salem.

“Every doctor and therapist has described Matt as a ‘very determined and motivated kid’ and that’s one of the key reasons that his recovery has been so remarkable. He’s worked very hard at it,” said Ann.

His reward was a spot on Fenway’s hallowed grounds, pitching again, and living out his passion.

Grateful for the way Matt has progressed in his recovery, Matt’s parents offered a few words of advice to every parent.

“Appreciate even the annoying things that your children do, spend lots of time with them and tell them every day that you love them because things in your life can change in a heartbeat,” Ann said. “As serious as Matt’s injury was, he was the healthiest child on the Pediatric floor at Spaulding. Matt’s roommate had to have a section of his brain removed due to a disease that was causing seizures, several children had brain cancer, while another teenager was paralyzed after being hit by a car. The average time spent at Spaulding is two to three months – Matt was one of the lucky ones, having to spend only four weeks there.”

Not just a game
The love of the game appears hereditary in the Cook family.

Tom, Matt’s father, was drafted by a major league team out of high school, but chose to pursue a college education prior to entering the big leagues. Unfortunately, he was sidelined with an injury, which rendered him unable to take up baseball as a career.

But Tom and Matt, and what seemed like the entire extended Cook family, as well as a number of Hamilton residents, including a contingent from the Hamilton-Wenham baseball team, watched at Fenway as the self-proclaimed nervous and excited Matt practiced his pitch with a Red Sox ball boy, while Julio Lugo tossed a few to warm up with his teammates nearby.

“Every ball player’s dream is to play professional baseball,” Matt said when asked if he ever dreamt of playing baseball professionally. “I just want to play for as long as I can and hopefully that includes playing in college.”

Although he didn’t get to personally meet any of the players, he did say that the Red Sox players who are in the throes of a winning season are among his favorite in the major league.

His favorite pitcher is Jon Papelbon. “I love the way he can close a game,” Matt said.

When asked who he would want to pitch to if he had a choice of any player past or present, he stated with certainty, “Ted Williams.”

His favorite catcher? Jason Varitek, who didn’t catch the game Matt was at, resting in the first game of a day-night doubleheader. But someday, Matt certainly wouldn’t mind firing a fastball to the Red Sox favorite.

A steely debate

Matt’s injury sparks renewed interest in the use of wooden versus aluminum bats through high school baseball play.

Although his parents, Ann and Tom Cook, are proponents of wooden bat usage, Matt has no opinion.

“The game is too dangerous with the power of these aluminum bats,” said Ann, who also referenced the case of 13-year-old New Jersey youngster Steven Domalewski, who suffered a long-term injury when he was hit by a line drive off an aluminum bat last year.

After eight months of recovery, Domaleski returned home to continue his recovery. Ann Cook said Joe Domalewski, Steven’s father, called to say how sorry he was about Matt’s injury. The elder Domalewski tracks metal bat-related injuries.

Hamilton-Wenham athletic director Don Doucette is also looking at ways to make the game safer. Ann said that helmets are now mandatory for anyone pitching batting practice. Doucette hopes the Massachusetts Interscholastic Athletic Association will mandate the change.

In the meantime, it won’t be long until Matt makes a return trip to his favorite ballpark.

Varitek and his wife sponsor a program at Children’s Hospital that donates a number of tickets to games during the season for patients and their families. Matt and his family have been invited back to Fenway by Children’s Hospital as part of the Varitek’s generosity to attend another game this summer. He’ll watch pre-game batting practice and will get to go on the field to speak with Jason himself.

With any luck, Matt will have an opportunity to pitch to his favorite catcher. No doubt it’ll be another strike, just like the pitch he threw last Thursday.

Saturday, May 19, 2007

Maimonides Medical Center Celebrates National Stroke Awareness Month

BROOKLYN — May is National Stroke Awareness Month, and the group of stroke experts at Maimonides Medical Center is encouraging Brooklyn residents to learn more about this serious health problem. Stroke is the third leading cause of death and a leading cause of adult disability in the United States.

Maimonides will provide free Stroke Risk Screenings on Wednesday, May 30 from 11 a.m. to 2 p.m. at 950 49th St., Brooklyn. Cholesterol, glucose and blood pressure screenings will be offered that day, as well as educational information.

According to Dr. Steven Rudolph, director of stroke medicine at Maimonides, knowing your numbers on these three risk factors can help you learn if you are at higher risk for stroke – and help you start on a plan to keep these risk factors under control.

There are many possible warning signs and symptoms of stroke. The experts at Maimonides strongly urge Brooklyn residents to call 911 and go to the nearest Stroke Center immediately if they experience any of the following: sudden numbness of face, arm or leg especially on one side of the body; sudden trouble seeing in one or both eyes; sudden confusion; trouble speaking or understanding; sudden trouble walking; dizziness, loss of balance or coordination.

If any of these symptoms occur, for even a brief period, it’s vital to seek immediate medical attention. Stroke is a “brain attack,” and rapid response greatly improves the chances for survival and a successful recovery. Stroke damage can be minimized and even reversed – it all depends on the speed with which the stroke sufferer can receive proper medical attention.

And remember, it is critically important where a patient receives care. Hospitals with a stroke center are best equipped to provide the most comprehensive care. The Maimonides Stroke Center is ranked among the top 5 percent in the nation by HealthGrades, the leading source of independent health care quality data.

When a stroke patient arrives at the Maimonides Emergency Room, an evaluation is done rapidly to ensure that the safest and most appropriate treatment is provided. The clot-busting drug, t-PA, is extremely beneficial for some patients, but dangerous for others. It must be administered within three hours of the onset of stroke symptoms.

Sunday, April 29, 2007

Emmy and Tony Award-winning Actress Julie Harris to Headline University of Michigan Aphasia Program Event

         June 2007 celebration honors program's 60-year success

ANN ARBOR, Mich., April 25 /PRNewswire-USNewswire/ -- Julie Harris, one
of the most awarded actresses of the stage and screen, will headline the
University of Michigan Aphasia Program's (UMAP) 60th anniversary
fundraising event, "It's a RAP: 60 Year Celebration of the University of
Michigan Aphasia Program." The event also includes an exclusive screening
of her new movie, "The Way Back Home," in which Ms. Harris portrays a woman
who had a stroke. The event will take place June 1-2, 2007.
(Photo: http://www.newscom.com/cgi-bin/prnh/20070425/CLW035 )
Julie Harris, 81, is a former client of the University of Michigan
Aphasia Program (http://www.aphasiahelp.com). She attended the program in May 2006
as part of her recovery from a stroke and resulting aphasia that occurred
in May 2001.
Ms. Harris is regarded as the most respected and honored stage actress
in America and is the most honored performer in Tony history with 10
nominations and five victories (1952, 1956, 1969, 1973 and 1977). She is
the only actress to date to receive 10 nominations and received a Lifetime
Achievement Award in 2002. During her acting career, she won three Emmys
(1962, 1969 and 2000). Television fans of "Knots Landing" remember her
fondly in the role of Lilimae Clemens. She was awarded the American
National Medal of the Arts in 1994 by the National Endowment of the Arts in
Washington D.C. and was a recipient of 2005 Kennedy Center Honors, along
with Robert Redford, Tina Turner, Tony Bennett and Suzanne Farrell. She was
born in Grosse Pointe, Michigan.

Tuesday, April 24, 2007

National Award presented to Adler Aphasia Center


National Award presented to Adler Aphasia Center Board Member
ParamusPost.com - Pampus,NJ,USA
The National Aphasia Association presented Audrey Holland, honoree at the
NAA’s Annual Spring Gala, with the 2007 National Aphasia Advocacy Award
on ...